Recognizing
that the space between her world and the one she is slowly but surely entering
is drawing closer, Pat Summitt, who has won more basketball games than anyone
in NCAA history, stepped down as coach of the Tennessee Lady Vols last week.
Summitt was diagnosed with early onset dementia last year, at the age of 58.
Early
onset dementia attacks people younger than 65. Many are in their 40s and 50s,
and some even in their 30s.
Alzheimer’s
disease, a form of dementia, affects millions. The statistics are staggering:
According to the Alzheimer’s Association, in 2011, 5.4 million Americans were
living with Alzheimer’s; 15,000,000 caregivers provide 17 billion hours of
unpaid care at home; Alzheimer’s costs the nation $200 billion annually, and someone
develops the disease every 68 seconds.
If
all the Alzheimer’s patients were placed in one state, it would be the 5th
largest in our nation.
It
is predicted that if a cure for dementia is not found by 2050, 16 million
Americans will have some form of the disease, with Alzheimer’s being the most
prevalent.
Life
is by no means over with a dementia diagnosis. Like any good coach, Pat Summitt
has a strategy to stay healthy as she faces Alzheimer’s. And her son, Tyler,
also a basketball coach, reminds us that we can learn from those with
Alzheimer’s. “Despite (it), she has stuck to her principles and stayed strong
in her faith. Her confidence to be open about this disease has taught me the
importance of honesty,” he said in an interview with Carol Steinberg of the
Alzheimer’s Foundation of America.
Tyler
is right: Victims of this disease still have much to teach us. Entering their
world on a fairly regular basis, I learn from them.
And every time I look into their eyes, I’m
reminded that the space between their world and mine is only the length of that
eight letter word: dementia.
One,
whose blank stare appears fixated on the other side of the room, no longer
recognizes me.
Only
several years ago he was in the early days of retirement. I remember him then,
still robust, vigorous, and active. And today, I miss that wry, almost cocky
smile of his.
“We
love you,” I remind him.
“You’re
a good man,” he says in a monotone voice with no facial expression. I wonder if
his answer is a standard response he learned years ago, like “hello,” “good-bye,”
“how do you do?”
Stepping
into the world of another, I ask this former leader in our church, “How are you
doing?”
Without
fail he answers the same: “Can’t complain.”
“Looks
like you just finished eating. What did you have?”
Like
a little boy who has been asked a question above his years of comprehension, he
doesn’t attempt to formulate a response but innocently looks to his wife for
the answer.
Down
the hall, I step into the world of another whose life changed years ago.
Walking
her to the dining hall, she surprises me. Instead of the same question she
normally repeats over and over, “Where am I?” this time she asks instead, “Who
put me here?”
Not
sure of the answer and not wanting to agitate her with a guess, I appeal to the
highest source possible: “The Lord,” I instantly tell her, masking my
hesitation.
“The
Lord,” she says, repeating it back to me, seemingly satisfied with my response,
at least for another evaporating moment in her life, and then slowly,
deliberately she declares, “Yes,” like a math student who has just discovered the
answer to an algebraic equation that became suddenly obvious.
Walking
out of their world, I get in my car, and as I turn the ignition, I ponder how the
space between their world and mine is encompassed by the same love of the One
who has us both in his caring hands.
In
10 Gospel Promises for Later Life,
Dr. Jane Marie Thibault tells about a nurse’s answer to a dementia patient’s
question, “Honey, what’s my name?”
After
the nurse told her, the patient said, “Oh, that’s right! Half the time I don’t
even know who I am!” Then, pointing to a cross on the wall, she said confidently,
“But he does, and that’s all that counts!”
Indeed
it is, no matter which side of that space you are living in.